Sunday, September 28, 2008

Overwhelmed

Overwhelmed. I think that's a good description of how we are feeling right now.

Overwhelmed by information. The forum this weekend was awesome and very helpful, especially the opportunities to talk to some of the experts in Hodgkin's lymphoma, but three days of learning about cancer is ALOT. I think it's time for us to take a break and think about something else for a few days (or at least try).

Overwhelmed by questions for my doctor on Tuesday. We already had a list of about 10 things we were wondering about(ranging from "Can I travel at Thanksgiving?" to "Is it okay to drink the acai juice someone gave us?") but after this weekend I think that list has doubled.

Overwhelmed by frustrating factors. As the initial shock of finding out about the disease wears off, the reality of living with it sets in. I'm 24 years old and I kinda feel like I'm living in a body that is 60 years older (for now, due to chemo, thankfully the effects are reversible). I can't just go for a run like I did before, I get tired way sooner and easier, and I have to constantly think about minimizing my risk of infection and any small infection that used to be normal and go away on its own has now become a quasi-emergency. Our normal, care-free young adult life has disappeared for the time being.

Overwhelmed by my overactive mind. Before, when I was living my life, I could sleep at night and although I was always making plans and setting goals for myself, I was actively working at them towards them during the day so it all balanced out. Now, it's like my body and ability can't keep up with my mind and my plans for myself, so I lay awake at night trying to figure out how I am going to work and what I wanna do with my life right now, etc. etc. I think cancer might be God's way of telling me to SLOW DOWN for awhile, but I'm having a hard time with that.

And yet, overwhelmed by God's goodness and blessings in the midst of suffering. Even this weekend, we had an unexpected gift when the director of patient programs for the Lymphoma Research Foundation offered us an extra room they had at the nice hotel the forum was at for free as a thank-you for our participation in a video they were making for young adults. We had a very relaxing Saturday night away from everything as a result.I am so thankful to have Ryan in my life, and for what God will do in our relationship as we walk through this together. I am thankful for all the awesome family and friends that God has put in my life and for the way that things like this make us truly appreciate what really matters. And I am thankful that God has a plan in all of this, and I look forward to seeing what He can do with this trial in my life.

I have some specific prayer requests again tonight:

- We learned a lot at the conference this weekend about radiation for Hodgkin's disease and the very serious risks of late effects associated with it. Please pray for our decisions about this in a few months, and for the doctors that will be advising us, as this is something that weighs heavy on our minds right now - pray that God will guide us to the right information to help us make the best decision.
- I'm going back to work tomorrow - my plan is to work half-days on non-chemo weeks (when I don't have appointments, and work from home the rest of the time (they gave me a remote access token for my computer here).

This is pretty cool. As I was typing this, Ryan came in to read Psalm 33 with me. This is part of it that spoke to exactly what I was writing and thinking about:

"The best-equipped army cannot save a king,
nor is great strength enough to save a warrior.
Don't count on your warhorse (chemo, radiation, etc.)
to give you victory - for all its strength, it cannot save you.
But the Lord watches over those who fear him,
those who rely on his unfailing love.
He rescues them from death, and keeps them alive
in times of famine.
We depend on the Lord alone to save us,
Only he can help us, protecting us like a shield.
In Him our hearts rejoice,
for we are trusting in His holy name,
Let your unfailing love surround us, Lord,
for our hope is in you alone."
Psalm 33:16-22

7 comments:

Anonymous said...

I love and miss you lots! I am glad the weekend went well for you both, and you were able to stay in the city as a bonus! You know you are always in our prayers.
All my heart!
Mom
When you can't find something that I "rearranged", call me!

Anonymous said...

Christie & Ryan - So glad good things happened for you - a free hotel room is pretty neat. Hang on to the blessings, they'll help to get you through. Getting back to work will help too. give your mind something else to focus on. Thanks for the Psalm 33 - Good for us all. Love you, Gahgee

MommyMeglet said...
This comment has been removed by the author.
MommyMeglet said...

Christie and Ryan-
Kevin and I have been keeping you guys in our daily prayers. Glad to hear you're responding well to treatment.

Seriously- If you need anything at all don't hesitate to call or email me. I'd sincerely be happy to help you in any way that I can- whether that me a meal. a ride, or simply a walk or a cup of coffee.

Love you guys-
Megan and Kevin

Anonymous said...

Christie & Ryan.....
Just finished reading your blogs ref the monster. Talk about a trip down memory lane! Although I was diagnosed with stage IV Non-Hodgkins Lymphoma (Jul 05) our experiences are quite similar.

I too felt overwhelmed with all the info yet I continue to search and research. The more info I have the more empowered I feel in this situation of which I have no control....does that make sense???

Never in my wildest dreams did I ever think terms such as CD-38 positive, Zap 70, trisomy 12 and unmutated immunoglobulin VH genes would become a regular part of my vocabulary.

I had chemo 3 days in a row every 3
weeks for 6 months. The exhaustion does do a number on you. It's been over 2 years since my last chemo I still tire quickly.

Our situations differ in that your Hodgkins Lymphoma is curable. My NHL is treatable however there is no cure as of yet.

Every time I get good blood work back I dance a jig and praise the Lord! Dr. Budde (as in buddy) used to tell me not to get too excited as this will ALWAYS come back. I respond with, "Don't take my joy! Today you can't find any cancer and today I'll celebrate!"

Some days are better than others trying to live life to the fullest with a dark cloud over my head. However, God is my rain coat should that cloud burst!

Please be diligent when it comes to germs, bacteria and viruses. Flu season is fast approaching and infection is NOT our friend!

Keep the faith, it does get better!
Feel free to contact me if you need to talk or just vent. I can honestly say, "Been there, done that!"

Hugs to you both and may God continue to shower you with His mercy.

MaryEllen said...

Gahgee always use to tell me to take a deep breath when I got overwhelmed. And I think you are right and deserve a break from all cancer all the time... so update us when you want and don't feel you owe us anything. Relax, enjoy getting back to work. It will help give you something else to think about... My assistant is moving to San Diego... not really close to you but still in CA. Love you Meme

Anonymous said...

Hi Christie, well I have 25 very loud soccer players here at the house having a pasta dinner. Maddie has so much fun with her soccer buddies. All of the talking and laughter is so good to hear. Life does go on,just keep the laughter and love in your heart.
We love and miss you, Aunt Chrissie